Tuesday, September 16, 2014

Dayson's 3rd Hospital Stay

Dayson on his walk.

Dayson had a clinic visit on Monday August 4th and his lung function was up to 103%, so he didn't have to go to the hospital in August, which we were very happy about. But then about 2 1/2 weeks ago, he came down with a fever and started throwing up and coughing, so after about a week of staying home from school, we decided he needed to go in and see the doctor because his body was not able to fight this sickness off. We packed a bag for him and Chet, pretty much knowing that they would admit him into the hospital. That Friday, September 5th, he was admitted into the hospital and he had already lost about 7 pounds, which is about 10% of his body weight. They did a chest x-ray and they were able to see about 3 different spots on his lungs that was causing an infection in his lungs. Comparable to pneumonia for normal people. So they started him on IV antibiotics, and breathing treatments & chest physiotherapy 4 times a day. It took a few days for the fever to break, but once it did, he finally started feeling better and has been getting better every day. Yesterday they tested his lung function and it was at 78%. So he's dropped quite a bit from the beginning of August, but every day it's getting better. They will retest him on Friday and hopefully let him come home on Friday as well. The first week, they didn't want me at the hospital much with him because I'm nursing Paisley, so after a week I was able to start taking a turn and staying the night with him. Luckily Paisley takes a bottle as well, so I just pump when I'm not with her. Chet, and Chet's mom and I rotate staying the night with him and trying to be home with the girls and trying to get work done. It's very tricky! So when Dayson is in the hospital, Chet and I feel like we are constantly on the go and trying to stay afloat. It's rough. But hopefully we only have 3 more days! I'm trying not to stress out or worry, but I think it's just a natural thing we do when our child is sick and we are pretty much helpless. I try not to think about all the negative things about this disease, but when he's in the hospital you kind of have to face them. The doctors are so nice and try to give it to me straight, but also probably sugar coat some things. I'm just hoping and praying for a drug that will help him stay out of the hospital. He's such a sweet kid, and has had to go through some tough stuff that no one should have to go through. Thank you all for your love, prayers and support!

Dayson and Chet